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Her kan du læse mere om MCS :
http://www.freenet.edmonton.ab.ca/~jmay
http://www.healthgate.com/HealthGate/MEDLINE/search.shtml
http://www.2nature.org/erc and search on
"air pollution"
http://www.ourlittleplace.com/
http://www.execpc.com/~goodscnt/misc/safety.html
http://www.best.com/~immune
Her kan du læse mere om MF/CTCL of PUVA
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SPECIFIK INFORMATION OM MF/CTCL AND PUVA PÅ ENGELSK
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OncoLink cutaneous t-cell lymphoma page:
http://oncolink.upenn.edu/disease/t-cell
PDQ data base-NCI information on mf:
http://noah.cuny.edu/cancer/nci/cancernet/100098.html
Abstracts of articles from Cancetlit database:
http://cancer.med.upenn.edu/cancernet/95/oct/710400.html
The Cutaneous Lymphoma Cooperative Group
Judi VanHorn, Editor
c/o Department of Dermatology
University of Cincinnati
PO Box 670523
Cincinnati, OH 45267-0523
Phone: (513) 558-6805.
This organization provides a quarterly newsletter and will send you a large packet of information re: mycosis fungoides/CTCL.
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INFORMATION OM SPECIFIKKE EMNER DER RELATERER TIL MF/CTCL PÅ ENGELSK
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"Malignant Melanoma in Patients Treated for Psoriasis with Methoxsalen (Psoralen) and Ultraviolet A Radiation (PUVA)" --abstract of article in New England Journal of Medicine by R.S. Stern, et. al.
"Should PUVA be abandoned?"-- Editorial on PUVA and melanoma risk from New England Journal of Medicine by K. Wolff: http://www.nejm.org/public/1997/0336/0015/1090/1.htm or http://www.nejm.org and click on "Search Past Issues" icon.
Cancernet article on Pruritus (itching). Note, especially, the
section called INTERVENTIONS:
http://www.noah.cuny.edu/qksearch.html
Click on CANCER; look under Symptoms; Click on PRURITUS
or try http://oncolink.upenn.edu/pdq_html/
Click on section entitled "Cancer Screening, Prevention, and Supportive Care
Statement"; Scroll down to chart entitled "Other PDQ Topics"; click on
Pruritus
Thrive@Health Medical
Database-For brief article on pruritus type "pruritus" into search engine
window. Look for article entitled "Postgraduate Medicine 1996 Jan: Treating
pruritus":
http://pathfinder.com/thrive/health/lookitup.html
Medline article containing info on mf and histoplasmosis:
Abstract of article on Breast Implants and ctcl:
http://www.newsfile.com/protect/women/public/2383673.htm
Article on methotrexate:
http://www.rxlist.com/cgi/generic/mtx.htm
Phototherapy equipment company- PhotoTherapeutiX, 1260 Palmetto
Ave., Suite C, Winter Park, FL 32789 (800)-290-7577 Fax: 407-628-4160
http://www.photothrx.com
Article: Clinical Applications of All-Trans-Retinoic Acid in Hematologic Malignancies- includes a brief description of the use of retinoids in the treatment of mycosis fungoides: http://daisy.moffitt.usf.edu/cancjrnl/v2n6/ Click on document entitled pharmacotherapy.htm
Abstract of article on long term risks of Retinoid herapy from the
Archives of Dermatology:
http://www.ama-assn.org/sci-pubs/journals/archive/derm
Follow links to vol_131/no_11/abstract.htm
"Focus On... The New Immunology": a general article on
interferons and interleukins. (No mention made of their use for mf):
http://pharminfo.com/cgi-bin/print_hit_bold.pl/pubs/msb/new_imunol.html?Immunology#first_hit
or http://pharminfo.com/pin_hp.html
or http://pharminfo.com/search_pin.html
and enter interferon into the search window.
Article on Thymopentin and its use for Sezary Syndrome:
http://pharminfo.com/pubs/transgen/tg_thym.html#tg_2_ther_derm
or Access the pharminfo-database search engine at http://pharminfo.com/search_pin.html Type
in thymopentin. Then click on Thymopentin Review.
National Psoriasis Foundation
http://www.psoriasis.org
NPF (National Psoriasis Foundation) article on uva/uvb:
http://www.psoriasis.org/pharmnews/8-2/uva_uvb.html
For VERY graphic pictures of later stage mf/Sezary,
Information on various hypotheses for development of mf:
http://info.med.yale.edu/cgi-bin/wwwwais
Just enter the key words "mycosis fungoides". Leave the index set at SEARCH THE
YALE-NEW HAVEN MEDICAL CENTER WEB. Then select the first article entitled Lynn_D._Wilson_M.D._M.P.H..html
Article on pathogenesis of ctcl:
http://www.medscape.com
You will need to fill out a registration form to secure a medscape ID and Password to
access this information. To get ID and Password, click on the HELP button at the bottom of
this page. (It's a bit of work, but worth it.) This database is intended for medical
professionals, but is available to consumers as well. Currently, there is no fee.
Once you have registered, return to the original Web page you started with, click on
Oncology, then click on current abstracts. Check listings under Abstracts section.
Information about Targretin:
http://www.lymphoma.org/ Click on Clinical
Trials Information icon. Then look under Non-Hodgkins T cell.
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INFORMATION OM KLINISKE UNDERSØGELSER PÅ ENGELSK
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Link to Seragin clinical trials:
http://oncolink.upenn.edu Click on Clinical
Trials. Then search using the key words fusion toxin.
Seragen home page:
http://www.netsci.org/Resources/Biotech/Seragen/top.html
News story about fusion toxin treatment for mf/ctcl:
http://wlbt.teclink.net/health/fusion.html
Contains some misleading info.
General clinical trial information at CenterWatch web site:
http://www.centerwatch.com
BioCryst Pharmaceuticals-manufacturers of BCX-34:
http://www.bio.com/companies/biocryst.html
News info on BCX-34
http://www.businesswire.com/webbox/bw.050396/106392.htm
or try just http://www.businesswire.com
Information on Phase I clinical trial to evaluate VIMRxynO (synthetic hypericin) as a
topically applied, light-activated therapy for specific skin diseases including psoriasis,
cutaneous T-cell lymphoma, warts, and Kaposi's sarcoma.
http://www.vimrx.com Click on PRESS RELEASES, then click `97 ABSTRACTS.
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UV BESKYTTENDE BEKLÆDNING PÅ ENGELSK
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SunSmart-A Canadian company:
http://www.interspin.com/sunsmart/index.htm
Sun Precautions-an American company:
http://www.solumbra.com/presltr.htm or,
for their home page
http://www.solumbra.com/sphome.htm#home
Toll free number: 1-800-882-7860
Address: Sun Precautions, Inc.
2815 Wetmore Ave.
Everett, WA 98201
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GENERELLE KILDER OM CANCER PÅ ENGELSK
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CancerGuide; Steve Dunn's Cancer Information Page:
http://cancerguide.org/ One of the BEST
general guides to cancer. A MUST read!
Database of information on cancer and other topics:
http://seidata.com/ Hit PIT button, then hit NetWellness
button.
Also try http://seidata.com/marriage/rcancer.html
But it may no longer be active. Let me know if it is.
Another large database of information on cancer:
http://www.noah.cuny.edu/qksearch.html
Click on CANCER
Physician's Data Query (PDQ):
http://oncolink.upenn.edu/pdq_html/
Oncolink at University of Pennsylvania:
http://oncolink.upenn.edu/disease/t-cell
Oncolink-general address:
http://oncolink.upenn.edu/
Pharminfonet Cancer Disease Center:
http://pharminfo.com/disease/cancer_db.html
Cancer Care:
http://www.cancercareinc.org.
The Leukaemia Research Fund-(BRITISH)
http://phoenix.jr2.ox.ac.uk/LRF/
Also check out:
http://www.leukaemia.demon.co.uk/websites.htm
http://www.cancerhelper.com/
Welcome to CancerHelper.com, we are here to give you all the general information you need to understand cancer. We give you an overview of cancer and some of the risk factors you should be on the lookout for. In addition, there is information on how you can detect cancer early to give you better chance of leading a healthy life along with some general symptoms that may be signs of different types of cancer. Finally, we review some treatment options that are available to those with cancer to let you know what to expect and help prepare you for what lies ahead. Browse the site to find all the information you need to learn about cancer in general.
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HOSPITALER/UNIVERSITETS AFDELINGER i DERMATOLOGI,ONCOLOGI PÅ ENGELSK
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List of medical schools worldwide that are online:
http://www.noacsc.ohio.gov/mercer/pw/phs/medschol.htm
Arizona health sciences center:
http://www.ahsc.arizona.edu/
Boston U. Medical Center Department of Hematology-Oncology:
http://med-med1.bu.edu/oncol.html
H. Lee Moffitt Cancer Center in Tampa Florida:
http://daisy.moffitt.usf.edu/
John's Hopkins Oncology Center:
http://www.med.jhu.edu/cancerctr/hematol/hemmain.htm
M.D. Anderson Hospital, Texas:
http://www.mdacc.tmc.edu/~immuno/duvic.html
Mie University Department of Dermatology, Japan:
http://www.medic.mie-u.ac.jp/derma
for campus phone number to Stanford U. mf clinic see:
http://directory02.stanford.edu/virtual/campusinfo/
or http://www-directory.Stanford.ORG/virtual/campusinfo/
Search database using key words: mycosis fungoides
U. of Arkansas Medical Center (UAMC):
http://www.uams.edu/
Department of Dermatology is not on line as yet. For latest phone number and location of
Dr. Patrick Carrington, department of Dermatology, (presumed) specialist in mf/ctcl, click
on The UAMS Campus Phone Book. Current phone listing is 501-686-5110
U. of Cinncinatti
http://www.med.uc.edu/htdocs/medicine/uccom.htm
Dermatology department is on line, but no information is available on mf support group.
Also see Barrett Cancer Center. In addition, many health related links.
U. of Iowa Dermatology Department:
http://tray.dermatology.uiowa.edu/home.html
U. of Michigan Medical Center Department of Dermatology:
http://www.med.umich.edu/derm/index.htm
Yale University Department of Dermatology:
http://info.med.yale.edu/dermatology/
Yale Department of Dermatology-photophoresis info:
http://info.med.yale.edu/dermatology/clinical
Then open directory entitled: photopheresis.html
List of Skin Diseases Research Core Centers:
http://www.nih.gov/niams/reports/directrp.htm
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GENEREL INFORMATION OM LYMPHOMER/LEUKEMI PÅ ENGELSK
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Lymphoma Research Foundation of America Inc.:
http://www.lymphoma.org/
Mike's Lymphoma Resource Page:
http://www.alumni.caltech.edu/~mike/lymphoma.html
Non-Hodgkin's Lymphoma Page:
http://www.westvirginia.net/~sigley/NHL_Web_Site.htm
Granny Barb's Leukaemia Links:
http://www.acor.org/diseases/hematology/Leukemia/
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ARKIV OG SUPPORTGRUPPE INFOMATION PÅ ENGELSK
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Article by Lynne Lamberg entitled: "Online Support Group Helps
Patients Live With, Learn More About the Rare Skin Cancer CTCL-MF", in May 14, 1997
issue of The Journal of the American Medical Association, (pages 1422-23). Full text is
available online at the AMA website:
http://www.ama-assn.org/jama
You need to register at the website (it's free), then click on "latest issue" or
select May 14, 1997 from the list, or check their archives.
Archives of all the cancer lists:
http://cure.medinfo.org/
Web page for BMT-Talk:
http://www.ai.mit.edu/people/laurel/Bmt-talk/bmt-talk.html
Web page for Hem/Onc:
http://walden.mo.net/~lackritz/hemonc.html
list of support groups-try OncoLink from the U. of Penn:
http://cancer.med.upenn.edu/
Search the Internet for other newsgroups/mailing lists by using Deja
News:
http://www.dejanews.com or, by using Reference.com: http://www.reference.com
or, by using Liszt:http://www.liszt.com
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DIVERSE HENVISNINGER PÅ ENGELSK
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National Library of Medicine:
http://www.nlm.nih.gov/
Merck Manual:
http://www.Merck.com
Be forewarned that this supposedly authoritative tome may contain some outdated and
inaccurate survival statistics for mycosis fungoides.
Comprehensive overall Dermatology ressource: Society of Dermatology
Physician Assistants
http://www.pacifier.com/~jomonroe
Email: jomonroe@pacifier.com.
Contains link to some 80 Dermatology Web sites
Table of contents for 18 Dermatology journals:
http://www.info-med.co.uk/adref/derm/derm_t.htm
New England Journal of Medicine:
http://www.nejm.org/
FDA (Food and DRUG Administration):
http://www.fda.gov/fdahomepage.html
NORD (National Organization on Rare Disorders):
http://www.pcnet.com/~orphan/
"The Median Isn't the Message" by Jay Gould:
http://cancerguide.org/median_not_msg.html
Discusses the nature of survival statistics and cancer and why we should NOT pay as much
attention to them as we ordinarily do. Written by a renowned scientist and 15 year
survivor of mesothelioma, formerly considered a virtually nonsurvivable cancer. EVERY
CANCER PATIENT SHOULD READ THIS FIRST!!
"Confronting Cancer Through Art"; an online exhibition:
http://www.oncolink.upenn.edu/.
Health Information Highway:
http://www.stayhealthy.com/index.htm
Contains lots of interesting medical links.
WALGREEN nationwide RX service:
1-800-Walgreen ( 1-800-925-4733)
WALGREEN's Home page:
http://www.walgreens.com/index.html
Traveling far from home for treatment? Check out the National
Association of Hospital Hospitality Houses Inc.:
http://visit-usa.com/hhh/
Information concerning employment discrimination and cancer:
http://www.aomc.org/cancerandADA.html
and http://www.usdoj.gov/crt/ada/adahom1.htm
The Foundation for Infinite Survival- This is a life-extension
organization. But do not be put off by the "wierdness" of it. Check it out for
their info services:
http://fis.org/index.html
Talking Books, a commercial site, offers a biography of actor Paul
Eddington, who had mf:
http://www.orma.co.uk/catnonf.htm#eddington
Melatonin information, commercial site:
http://www.teleport.com/~jor/
Note that people with lymphoma are advised NOT to use Melatonin.
Articles on hypnosis:
http://pathfinder.com/@@XhQ37AYAnZorR3a2/thrive
Click on Look-it-up database, then use keyword: hypnosis
Information on Essiac:
http://www.livelinks.com/sumeria/
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GENERELLE HELBREDSINFORMATIONS-DATABASER PÅ ENGELSK
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Interactive Patient Help File:
http://medicus.marshall.edu/help
Check out parent directory.
Women's Health Weekly Public Database:
http://www.newsfile.com/homepage/psearch.htm
RxList-searchable index on drugs and medication interactions:
http://www.rxlist.com
U.S. Government Department of Health and Humam Services:
http://odphp2.osophs.dhhs.gov/consumer.htm
The Health Gazette:
http://www.freenet.scri.fsu.edu/HealthGazette/gazette.html
The Virtual Hospital:
http://www.vh.org/
HealthAnswers:
http://www.healthanswers.com
Columbia Health Care "Virtual Body" and "Virtual
Hospital":
http://www.columbia.net
MedAccess-general health information as well as details on
physicians and nursing homes:
http://www.medaccess.com
Mayo Health Oasis-general health information:
http://www.mayo.ivi.com
HealthGate-general health information:
http://www.healthgate.com
Healthgate-free access to medline and cancerlit databaases as well
as general health information:
http://www.healthgate.com/
HealthWorld Online-general health information:
http://www.healthy.net
Thrive-general health information
http://www.pathfinder.com/HLC
Medsite Navigator:
http://www.MedsiteNavigator.com/
Medical Matrix-for general medical information:
http://www.medmatrix.org/
Today's Research News:
http://biomednet.com./hmsbeagle/
AOL NETFINDs-a new web search engine that is available to members
and non members:
http://www.aol.com/netfind
Healthfinder-provides reliable health info with links to more than 550 other Web sites, links to on line documents, including health publications and technical literature. Connection to on-line discussion and self help groups. Data bases that can be searched by topic: and FAQS on selected topics:
Reuters medical news website:
http://www.reutershealth.com
AMA Medical News Site
http://www.ama-assn.org/insight/
Here are some web addresses for free searching of Medline:
http://www.ncbi.nlm.nih.gov/PubMed/
http://www.healthgate.com/Healthgate/MEDLINE/search.shtml
http://www.medscape.com/misc/FormMedlineInfLive.html
http://biomednet.com/db/medline
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Her kan du finde mine venner :
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( http://www.blazingtattles.com
) (Claire Gilbert)
Claire Gilbert har ligesom jeg MCS. Claire udgiver bladet *Blazing Tatles*
( http://www.ourlittleplace.com/
) (Jacki Barineau)
Jacki har også MCS. Jacki har lavet en meget fin side til minde om Julia Kendall, der
kæmpede for at få forståelse for sygdommen MCS, og skaderne forårsaget af kemikalier
af enhver art.
( http://www.freenet.edmonton.ab.ca/~jmay
) (Julie May)
Julie har MCS, og ved en masse om MCS.
( http://www.best.com/~immune/stephanie/ ) (Stephanie)
Her finder du historied om Stephanie - en ganske ung pige der er blevet
meget syg efter at have været udsat for parfume. Jeanne, Stephanies mor, kæmper en sej
kamp for at gøre Stephanies liv så sikkert som muligt.
Min veninde Mel Winkelbauer har en hjemmeside, hvor hun fortæller lidt om sig selv og sin familie - Du finder siden her http://www.erie.net/~melwink/
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Andre interessante links
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http://members.aol.com/wsmcsn/index.htm
Washington State Multiple Chemical Sensitivity Network
http://www.coem.com/index.html#menu
Center for Occupational & Environmental Medicine
http://www.cancerbacup.org.uk/info/lymphedema.htm
Cancer information from England
http://www.ciin.org
http://www.mcsrr.org/
MCS Referral & Resources
http://www.soapworks.com/
Soapworks - safe soap/cleaning products
http://www.angelfire.com/art2/joan/mcs.htm
Multiple chemical sensitivity sweat shirts and t-shirts. Create an awareness!
http://www.burningissues.org/
Burning Issues/Clean Air Revival
http://www.chem-tox.com/
Chemicals found in Indoor Air
http://www.independentliving.org/STANDARDRULES/StandardRules1.html
Standard Rules on the Equalization of Opportunities for Persons with Disabilities
(FN's Standardregler om Lige Muligheder for Handicappede - tiltrådt af Danmark i 1994)
http://www.geocities.com/HotSprings/Spa/4415/index.html
The Multiple Chemical Sensitivities Primer - Where to start looking for information about
MCS
http://www.n-i.com/NCchem/
North Carolina Chemical Injury Network
http://www.epa.gov/docs/opptintr/chemfact/index.html
Chemicals in the Environment: OPPT Chemical Fact Sheets
http://caq.com/caq53.gws.html
Gulf War Sundrome Covered Up
http://www.ssa.gov/SSA_Home.html
USA's Social Security Online
http://www.cdc.gov/
Centers for Disease Control and Prevention (CDC)
http://www.ou.edu:80/cems/
School of Chemical Engineering and Materials Science at the University of Oklahoma.
http://galaxy.einet.net/galaxy/Medicine/Medical-Specialties.html
Medical Specialties
http://www.med.nyu.edu/research.html
New York University Medical Center
http://www.interlog.com/~environ/
Environmental Health Group
http://charlotte.med.nyu.edu/niehs/NIEHSCenter.html
NYU NIEHS Center
http://www.envirolink.org/
Envirolink Home Page
http://www.sig.net/~allergy/welcome.html
The On-Line Allergy Center
http://www.epa.gov/docs/EPA-GENERAL/1995/October/Day-04/pr-626.txt.html
Proposed Guidelines for Neurotoxicity Risk Assessment
http://www.danmark.dk/hr/owa/danmark.dk?side=myndigheder
Myndigheder og organisationer i Danmark
http://www.katalog.tele.dk/
E-post kataloget i Danmark
http://www.copenhagenpictures.dk/
Copenhagen pictures
http://www.garlicpage.com/
Info/recepies with garlic
http://www.ing.dk/
Ingeniøren på Nettet
http://www.astma-allergi.dk/
Danmarks Astma-Allergi Forbunds hjemmeside
http://www.astma-kbh.dk/
Astma-Allergi Foreningen i Storkøbenhavn
http://www.cam.org/~intsci/people.html
Want to find someone on the Internet? These are a few tools available to help find E-mail
address, organization, host, domain, phone number, etc. through the Internet.
http://www.auh.dk/akh/afd/arbmed/dk/index.htm#toppen Arbejdsmedicinsk klinik, Århus Kommune Hospital
Rigtig god artikel om hvordan leveren fungerer ( kun på Engelsk)
http://www.positivehealth.com/permit/Articles/Nutrition/cabot37.htm
PORPHYRIA INFO ( kun på Engelsk)
http://www.mall-net.com/mcs/porphyria.html
HYPERCOAG BLOOD AND CFS INFO (kun på Engelsk)
http://hemex.com/cfs/
http://www.ctaz.com/~donavan/evidence.htm
OXYGEN (HYPOXIC CONDITIONS) AND OTHER GOOD IDEAS (kun på
Engelsk)
http://www.ozemail.com.au/~olbas/chapter2.html
http://www.ozemail.com.au/~olbas/chapter1.html
http://www.phymac.med.wayne.edu/FacultyProfile/penney/COHQ/figco10.htm
http://www.drbronner.com/ - Her kan du læse om Dr Bronner's Castile soap (Kun på engelsk)
Castile soap er noget af det bedste, jeg har været i nærheden af. Det opløser f.eks. fedtpletter - dem ved komfuret - og det kræver ikke kræfter. Jeg kan kun anbefale det. Siden jeg købte det, har jeg haft en sprayflaske stående ved vasken med en opløsning af vand og en lille smule Dr. Bronners Castile Soap i - der skal nemlig ikke bruges ret meget - så det er MEGET drøjt i brug. - En dag kom Mikael hjem med en ret stor olieplet på en sweat-shirt. Da jeg havde læst og oplevet, at castile opløser fedt, tja, så hældte jeg castile soap på pletten UDEN at grubbe, rullede trøjen sammen og sådan lå den i ca. 3 timer, før den kom i vaskamaskinen. Pletter var så godt som væk, da trøjen var blevet vasket. DET var imponerende - olie er jo noget af det, der er sværest at få af, sammen med rødvin. Jeg har ikke haft chancen endnu til at afprøve det på rødven - jeg vil fortælle om det virker, når jeg har afprøvet det.
Jeg køber det i Natur og Sundhed, Nørrebrogade 57, 2200 København N, tlf.: 35 35 76 02 - der er åbent hervdage fra 9-17.30, fredage 9 - 18, og lørdage fra 9 - 14.00. - JEG ER IKKE BESTILT ELLER BETALT FOR AT SIGE DETTE OM PRODUKTET - DET ER MIN EGEN MENING OM PRODUKTET.
HER FINDER DU ET LÆGELEKSION - meget interessant side
http://www.medicus.dk/aspForside/inter.asp
http://www.sundhedsguiden.dk/forside/ - SUNDHEDSGUIDEN
GRØN KULTUR DANMARK
IDEEN :
Der skal skabes grundlag for, at alle får mulighed for at deltage i kulturelle arrangementer uden ufrivilligt ophold i tobaksrøg og i videst muligt omfang i et økologisk miljø.
Mange mennesker føler sig generet af tobaksrøg ved bl.a. koncerter - nogle så meget
at de slet ikke kan deltage.
Derfor vil vi gerne etablere nye kulturcentre, hvor der kun må ryges på udvalgte steder - alle andre lokaliteter i husene bliver røgfri.
Formand
Preben Hoffmann Rosenberg
Odinsvej 4, 7000 Fredericia
Tlf.: 75 93 26 01
e-post: gkd@gkd.dk
http://www.mst.dk/forside/ - Miljøstyrelsen
http://www.mst.dk/homepage/ - The Danish EPA - Environmental protection Agency
http://www.ni.dk/ - En danks nyhedsguide - rigtig god
http://www.hel.dk/ - En søgemaskine omhandlende helbredsoplysninger af enhver art
Safety Alerts - food recall information. (KUN PÅ ENGELSK)
http://www.safetyalerts.com/rcls/category/food.htm
Clinical Considerations for Specific Herb-Drug Interactions & Potential Adverse Effects of Herbs this list may be found at:
http://www.healthmall.com/specific.html
(KUN PÅ ENGELSK)
INTERNET TIPS
http://www.kkb.bib.dk/bry/internet.htm
Få tips til, hvilken søgemaskine du skal bruge, når du søger på nettet - RIGTIG GOD SIDE !!!!
Den 27. marts 2001 var der en artikel i AKTUELT (den jeg reagerede på, og som resulterede i, at AKTUELT skrev min historie)
TIL VIBEKE PESCHARDT OG JØRN JESPERSEN - ARTIKLEN I AKTUELT D.D. OM KEMI I KROPPEN.
Kære Vibeke Peschardt og Jørn Jespersen -)
Det er med STOR glæde jeg som MCS patient (Multiple Chemical Sensitivity) læser artiklen i dagens Aktuelt.
Jeg håber INDERLIGT, at det centrale center bliver en realitet - jeg VED, at det er Søren Vesterhauges (Rigshgospitalet) store ønske - og det er også vores - PATEINTERNES - ønske, for vi kæmper med næb og klør for retfærdig behandling i systemet. Problemet er jo, at INGEN tænker på kemikalier, når ord som SHAMPOO VASKEPULVER DEODORANT PARFUME AFTERSHAVE bliver nævnt - men DET ER IKKE ANDET - og det kan i yderste konsekvens slå mennesker som jeg selv i hjel. Der er idag kun ganske få læger, der kender til problematikken, og derfor mangler vi forståelse stort set over alt.
I anledning af artiklen, vil jeg da gerne opfordre Jer - og gerne andre - til at se LÆGENS BORD TORSDAG DEN 5. APRIL KL. 19.30 PÅ DR 1 SAMT DE KEMISKE BØRN ONSDAG DEN 18. APRIL KL. 20.00 PÅ DR 1. - Lægens Bord handler DECIDERET OM MCS, og jeg er brugt som *case* - De Kemiske Børn handler om hvordan kemi påvirker os, igen er jeg brugt som *case*.
Peder Wolkoff, AMI (pwo@ami.dk) arbejder intenst sammen med Christian Ege, Det Økologiske Råd (christian@ecocouncil.dk) om at få en offentlig høring på benene omkring samme emne - nemlig hverdagens kemi og hvordan den påvirker os. Høringen vil finde sted i maj, tror jeg nok det er.
Jeg er idag STOLT af at være dansker - for vi er altså ude i verden anset for at være foran, når det handler om forbud mod brug af kemiske stoffer.
En lille krølle på historien er, at VORES EGEN Peder Wolkoff har skrevet en doktorafhandling om indeklima. Den indkøbte jeg og delte den med en god ven i Canada. Han havde så igen nogle venner i Canada, der kæmpede med helbredsproblemer, fordi deres huse var bygget på en gammel benzingrund. De havde lagt sag an imod alle mulige, UDEN at få noget ud af det. SÅ FIK DE WOLKOFFS AFHANDLING I HÅNDEN, LAGDE DEN PÅ DOMMERENS BORD OG VANDT !!!!!!! - De fik omkring 7 millioner i erstatning til at oprense grunden for, og så fik de lov at købe grunden for EEN canadisk dollar. DET ER DA EN VIDUNDERLIG HISTORIE, SOM VI HER I DANMAKR BØR VÆRE MERE END STOLTE OVER -))
Hav en fortsat rigtig god dag -))
Mange taknemlige hilsner
Helle Kongevang
SVAR FRA VIBEKE PESCHARDT SAMME DATO :
Kære Helle
Tak for mailen som jeg blev glad for. Har du noget imod at jeg lægger den ud på min hjemmeside www.vibekepeschardt.dk så flere måske kan blive opmærksomme på sagen. Aktuelt har desværre ikke så mange læsere, så jo mere vi formidler budskaberne jo bedre. Den kemi vi taler om er dødelig - dioxin, kvivksølv - alle POP-erne, men hverdagskemien er selvfølgelig lige så slem. Jeg prøver at mase med sagen hver gang jeg møder den - og en dag lykkes den selvom det er et sejt træk.
Venlig hilsen
Vibeke
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