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Here you can read more about MCS :
http://www.freenet.edmonton.ab.ca/~jmay
http://www.healthgate.com/HealthGate/MEDLINE/search.shtml
http://www.2nature.org/erc and search on
"air pollution"
http://www.ourlittleplace.com/
http://www.execpc.com/~goodscnt/misc/safety.html
http://www.best.com/~immune
Here you can read more about MF/CTCL of PUVA
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SPECIFIC INFORMATION ABOUT MF/CTCL AND PUVA
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OncoLink cutaneous t-cell lymphoma page:
http://oncolink.upenn.edu/disease/t-cell
PDQ data base-NCI information on mf:
http://noah.cuny.edu/cancer/nci/cancernet/100098.html
Abstracts of articles from Cancetlit database:
http://cancer.med.upenn.edu/cancernet/95/oct/710400.html
The Cutaneous Lymphoma Cooperative Group
Judi VanHorn, Editor
c/o Department of Dermatology
University of Cincinnati
PO Box 670523
Cincinnati, OH 45267-0523
Phone: (513) 558-6805.
This organization provides a quarterly newsletter and will send you a large packet of information re: mycosis fungoides/CTCL.
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INFORMATION ON SPECIFIC TOPICS PERTAINING TO MF/CTCL
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"Malignant Melanoma in Patients Treated for Psoriasis with Methoxsalen (Psoralen) and Ultraviolet A Radiation (PUVA)" --abstract of article in New England Journal of Medicine by R.S. Stern, et. al.
"Should PUVA be abandoned?"-- Editorial on PUVA and melanoma risk from New England Journal of Medicine by K. Wolff: http://www.nejm.org/public/1997/0336/0015/1090/1.htm or http://www.nejm.org and click on "Search Past Issues" icon.
Cancernet article on Pruritus (itching). Note, especially, the
section called INTERVENTIONS:
http://www.noah.cuny.edu/qksearch.html
Click on CANCER; look under Symptoms; Click on PRURITUS
or try http://oncolink.upenn.edu/pdq_html/
Click on section entitled "Cancer Screening, Prevention, and Supportive Care
Statement"; Scroll down to chart entitled "Other PDQ Topics"; click on
Pruritus
Thrive@Health Medical
Database-For brief article on pruritus type "pruritus" into search engine
window. Look for article entitled "Postgraduate Medicine 1996 Jan: Treating
pruritus":
http://pathfinder.com/thrive/health/lookitup.html
Medline article containing info on mf and histoplasmosis:
Abstract of article on Breast Implants and ctcl:
http://www.newsfile.com/protect/women/public/2383673.htm
Article on methotrexate:
http://www.rxlist.com/cgi/generic/mtx.htm
Phototherapy equipment company- PhotoTherapeutiX, 1260 Palmetto
Ave., Suite C, Winter Park, FL 32789 (800)-290-7577 Fax: 407-628-4160
http://www.photothrx.com
Article: Clinical Applications of All-Trans-Retinoic Acid in Hematologic Malignancies- includes a brief description of the use of retinoids in the treatment of mycosis fungoides: http://daisy.moffitt.usf.edu/cancjrnl/v2n6/ Click on document entitled pharmacotherapy.htm
Abstract of article on long term risks of Retinoid herapy from the
Archives of Dermatology:
http://www.ama-assn.org/sci-pubs/journals/archive/derm
Follow links to vol_131/no_11/abstract.htm
National Psoriasis Foundation
http://www.psoriasis.org
NPF (National Psoriasis Foundation) article on uva/uvb:
http://www.psoriasis.org/pharmnews/8-2/uva_uvb.html
For VERY graphic pictures of later stage mf/Sezary,
Information on various hypotheses for development of mf:
http://info.med.yale.edu/cgi-bin/wwwwais
Just enter the key words "mycosis fungoides". Leave the index set at SEARCH THE
YALE-NEW HAVEN MEDICAL CENTER WEB. Then select the first article entitled Lynn_D._Wilson_M.D._M.P.H..html
Article on pathogenesis of ctcl:
http://www.medscape.com
You will need to fill out a registration form to secure a medscape ID and Password to
access this information. To get ID and Password, click on the HELP button at the bottom of
this page. (It's a bit of work, but worth it.) This database is intended for medical
professionals, but is available to consumers as well. Currently, there is no fee.
Once you have registered, return to the original Web page you started with, click on
Oncology, then click on current abstracts. Check listings under Abstracts section.
Information about Targretin:
http://www.lymphoma.org/ Click on Clinical
Trials Information icon. Then look under Non-Hodgkins T cell.
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CLINICAL TRIAL INFORMATION
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Link to Seragin clinical trials:
http://oncolink.upenn.edu Click on Clinical
Trials. Then search using the key words fusion toxin.
Seragen home page:
http://www.netsci.org/Resources/Biotech/Seragen/top.html
News story about fusion toxin treatment for mf/ctcl:
http://wlbt.teclink.net/health/fusion.html
Contains some misleading info.
General clinical trial information at CenterWatch web site:
http://www.centerwatch.com
BioCryst Pharmaceuticals-manufacturers of BCX-34:
http://www.bio.com/companies/biocryst.html
News info on BCX-34
http://www.businesswire.com/webbox/bw.050396/106392.htm
or try just http://www.businesswire.com
Information on Phase I clinical trial to evaluate VIMRxynO (synthetic hypericin) as a
topically applied, light-activated therapy for specific skin diseases including psoriasis,
cutaneous T-cell lymphoma, warts, and Kaposi's sarcoma.
http://www.vimrx.com Click on PRESS RELEASES, then click `97 ABSTRACTS.
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UV PROTECTIVE CLOTHING
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SunSmart-A Canadian company:
http://www.interspin.com/sunsmart/index.htm
Sun Precautions-an American company:
http://www.solumbra.com/presltr.htm or,
for their home page
http://www.solumbra.com/sphome.htm#home
Toll free number: 1-800-882-7860
Address: Sun Precautions, Inc.
2815 Wetmore Ave.
Everett, WA 98201
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GENERAL RESOURCES FOR CANCER
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CancerGuide; Steve Dunn's Cancer Information Page:
http://cancerguide.org/ One of the BEST
general guides to cancer. A MUST read!
Database of information on cancer and other topics:
http://seidata.com/ Hit PIT button, then hit NetWellness
button.
Also try http://seidata.com/marriage/rcancer.html
But it may no longer be active. Let me know if it is.
Another large database of information on cancer:
http://www.noah.cuny.edu/qksearch.html
Click on CANCER
Physician's Data Query (PDQ):
http://oncolink.upenn.edu/pdq_html/
Oncolink at University of Pennsylvania:
http://oncolink.upenn.edu/disease/t-cell
Oncolink-general address:
http://oncolink.upenn.edu/
Cancer Care:
http://www.cancercareinc.org.
The Leukaemia Research Fund-(BRITISH)
http://phoenix.jr2.ox.ac.uk/LRF/
Also check out:
http://www.leukaemia.demon.co.uk/websites.htm
Welcome to CancerHelper.com, we are here to give you all the general information you need to understand cancer. We give you an overview of cancer and some of the risk factors you should be on the lookout for. In addition, there is information on how you can detect cancer early to give you better chance of leading a healthy life along with some general symptoms that may be signs of different types of cancer. Finally, we review some treatment options that are available to those with cancer to let you know what to expect and help prepare you for what lies ahead. Browse the site to find all the information you need to learn about cancer in general.
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HOSP./UNIVERSITY DEPARTMENTS of DERMATOLOGY, ONCOLOGY, etc.
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List of medical schools worldwide that are online:
http://www.noacsc.ohio.gov/mercer/pw/phs/medschol.htm
Arizona health sciences center:
http://www.ahsc.arizona.edu/
Boston U. Medical Center Department of Hematology-Oncology:
http://med-med1.bu.edu/oncol.html
H. Lee Moffitt Cancer Center in Tampa Florida:
http://daisy.moffitt.usf.edu/
John's Hopkins Oncology Center:
http://www.med.jhu.edu/cancerctr/hematol/hemmain.htm
M.D. Anderson Hospital, Texas:
http://www.mdacc.tmc.edu/~immuno/duvic.html
Mie University Department of Dermatology, Japan:
http://www.medic.mie-u.ac.jp/derma
for campus phone number to Stanford U. mf clinic see:
http://directory02.stanford.edu/virtual/campusinfo/
or http://www-directory.Stanford.ORG/virtual/campusinfo/
Search database using key words: mycosis fungoides
U. of Arkansas Medical Center (UAMC):
http://www.uams.edu/
Department of Dermatology is not on line as yet. For latest phone number and location of
Dr. Patrick Carrington, department of Dermatology, (presumed) specialist in mf/ctcl, click
on The UAMS Campus Phone Book. Current phone listing is 501-686-5110
U. of Cinncinatti
http://www.med.uc.edu/htdocs/medicine/uccom.htm
Dermatology department is on line, but no information is available on mf support group.
Also see Barrett Cancer Center. In addition, many health related links.
U. of Iowa Dermatology Department:
http://tray.dermatology.uiowa.edu/home.html
U. of Michigan Medical Center Department of Dermatology:
http://www.med.umich.edu/derm/index.htm
Yale University Department of Dermatology:
http://info.med.yale.edu/dermatology/
Yale Department of Dermatology-photophoresis info:
http://info.med.yale.edu/dermatology/clinical
Then open directory entitled: photopheresis.html
List of Skin Diseases Research Core Centers:
http://www.nih.gov/niams/reports/directrp.htm
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GENERAL INFORMATION ABOUT LYMPHOMA/LEUKEMIA
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Lymphoma Research Foundation of America Inc.:
http://www.lymphoma.org/
Mike's Lymphoma Resource Page:
http://www.alumni.caltech.edu/~mike/lymphoma.html
Non-Hodgkin's Lymphoma Page:
http://www.westvirginia.net/~sigley/NHL_Web_Site.htm
Granny Barb's Leukaemia Links:
http://www.acor.org/diseases/hematology/Leukemia/
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ARCHIVE AND SUPPORT GROUP INFORMATION
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Article by Lynne Lamberg entitled: "Online Support Group Helps
Patients Live With, Learn More About the Rare Skin Cancer CTCL-MF", in May 14, 1997
issue of The Journal of the American Medical Association, (pages 1422-23). Full text is
available online at the AMA website:
http://www.ama-assn.org/jama
You need to register at the website (it's free), then click on "latest issue" or
select May 14, 1997 from the list, or check their archives.
Archives of all the cancer lists:
http://cure.medinfo.org/
Web page for BMT-Talk:
http://www.ai.mit.edu/people/laurel/Bmt-talk/bmt-talk.html
Web page for Hem/Onc:
http://walden.mo.net/~lackritz/hemonc.html
list of support groups-try OncoLink from the U. of Penn:
http://cancer.med.upenn.edu/
Search the Internet for other newsgroups/mailing lists by using Deja
News:
http://www.dejanews.com or, by using Reference.com: http://www.reference.com
or, by using Liszt:http://www.liszt.com
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MISCELANEOUS LISTINGS
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National Library of Medicine:
http://www.nlm.nih.gov/
Merck Manual:
http://www.Merck.com
Be forewarned that this supposedly authoritative tome may contain some outdated and
inaccurate survival statistics for mycosis fungoides.
Comprehensive overall Dermatology ressource: Society of Dermatology
Physician Assistants
http://www.pacifier.com/~jomonroe
Email: jomonroe@pacifier.com.
Contains link to some 80 Dermatology Web sites
Table of contents for 18 Dermatology journals:
http://www.info-med.co.uk/adref/derm/derm_t.htm
New England Journal of Medicine:
http://www.nejm.org/
FDA (Food and DRUG Administration):
http://www.fda.gov/fdahomepage.html
NORD (National Organization on Rare Disorders):
http://www.pcnet.com/~orphan/
"The Median Isn't the Message" by Jay Gould:
http://cancerguide.org/median_not_msg.html
Discusses the nature of survival statistics and cancer and why we should NOT pay as much
attention to them as we ordinarily do. Written by a renowned scientist and 15 year
survivor of mesothelioma, formerly considered a virtually nonsurvivable cancer. EVERY
CANCER PATIENT SHOULD READ THIS FIRST!!
"Confronting Cancer Through Art"; an online exhibition:
http://www.oncolink.upenn.edu/.
Health Information Highway:
http://www.stayhealthy.com/index.htm
Contains lots of interesting medical links.
WALGREEN nationwide RX service:
1-800-Walgreen ( 1-800-925-4733)
WALGREEN's Home page:
http://www.walgreens.com/index.html
Traveling far from home for treatment? Check out the National
Association of Hospital Hospitality Houses Inc.:
http://visit-usa.com/hhh/
Information concerning employment discrimination and cancer:
http://www.aomc.org/cancerandADA.html
and http://www.usdoj.gov/crt/ada/adahom1.htm
The Foundation for Infinite Survival- This is a life-extension
organization. But do not be put off by the "wierdness" of it. Check it out for
their info services:
http://fis.org/index.html
Talking Books, a commercial site, offers a biography of actor Paul
Eddington, who had mf:
http://www.orma.co.uk/catnonf.htm#eddington
Melatonin information, commercial site:
http://www.teleport.com/~jor/
Note that people with lymphoma are advised NOT to use Melatonin.
Articles on hypnosis:
http://pathfinder.com/@@XhQ37AYAnZorR3a2/thrive
Click on Look-it-up database, then use keyword: hypnosis
Information on Essiac:
http://www.livelinks.com/sumeria/
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GENERAL HEALTH INFO DATABASES
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Interactive Patient Help File:
http://medicus.marshall.edu/help
Check out parent directory.
Women's Health Weekly Public Database:
http://www.newsfile.com/homepage/psearch.htm
RxList-searchable index on drugs and medication interactions:
http://www.rxlist.com
U.S. Government Department of Health and Humam Services:
http://odphp2.osophs.dhhs.gov/consumer.htm
The Health Gazette:
http://www.freenet.scri.fsu.edu/HealthGazette/gazette.html
The Virtual Hospital:
http://www.vh.org/
HealthAnswers:
http://www.healthanswers.com
Columbia Health Care "Virtual Body" and "Virtual
Hospital":
http://www.columbia.net
MedAccess-general health information as well as details on
physicians and nursing homes:
http://www.medaccess.com
Mayo Health Oasis-general health information:
http://www.mayo.ivi.com
HealthGate-general health information:
http://www.healthgate.com
Healthgate-free access to medline and cancerlit databaases as well
as general health information:
http://www.healthgate.com/
HealthWorld Online-general health information:
http://www.healthy.net
Thrive-general health information
http://www.pathfinder.com/HLC
Medsite Navigator:
http://www.MedsiteNavigator.com/
Medical Matrix-for general medical information:
http://www.medmatrix.org/
Today's Research News:
http://biomednet.com./hmsbeagle/
AOL NETFINDs-a new web search engine that is available to members
and non members:
http://www.aol.com/netfind
Healthfinder-provides reliable health info with links to more than 550 other Web sites, links to on line documents, including health publications and technical literature. Connection to on-line discussion and self help groups. Data bases that can be searched by topic: and FAQS on selected topics:
Reuters medical news website:
http://www.reutershealth.com
AMA Medical News Site
http://www.ama-assn.org/insight/
Here are some web addresses for free searching of Medline:
http://www.ncbi.nlm.nih.gov/PubMed/
http://www.healthgate.com/Healthgate/MEDLINE/search.shtml
http://www.medscape.com/misc/FormMedlineInfLive.html
http://biomednet.com/db/medline
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Here you can meet my friends :
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( http://www.blazingtattles.com
). (Claire Gilbert)
Claire Gilbert has MCS like I have. Claire sends out *Blazing Tatles*
( http://www.ourlittleplace.com/
) (Jacki Barineau)
Jacki does have MCS too. Jacki has put up a site in memory of Julia Kendall, who passed
away far too young. Julia fought for right for people with MCS, and to get people to
understand the damages made by use of chemicals of all kinds.
( http://www.freenet.edmonton.ab.ca/~jmay
) (Julie May)
Julie has MCS, and does know a lot about MCS.
( http://www.best.com/~immune/stephanie/) (Stephanie)
Her you can read the story about Stephanie - a very young girl, who got
extremely sick after being exposed to perfume. Jeanne, Stephanie's mom, fights hard to
make Stephanie's life as safe as possible.
My friend Mel Winkelbauer has a site where she tells a little about
herself and her familu - You find the site here :
http://www.erie.net/~melwink/
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Other interesting links
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http://members.aol.com/wsmcsn/index.htm
Washington State Multiple Chemical Sensitivity Network
http://www.coem.com/index.html#menu
Center for Occupational & Environmental Medicine
http://www.cancerbacup.org.uk/info/lymphedema.htm
Cancer information from England
http://www.ciin.org
Chemical Injury Information Network
http://www.mcsrr.org/
MCS Referral & Resources
http://www.soapworks.com/
Soapworks - safe soap/cleaning products
http://www.angelfire.com/art2/joan/mcs.htm
Multiple chemical sensitivity sweat shirts and t-shirts. Create an awareness!
http://www.burningissues.org/
Burning Issues/Clean Air Revival
http://www.chem-tox.com/
Chemicals found in Indoor Air
http://www.independentliving.org/STANDARDRULES/StandardRules1.html
Standard Rules on the Equalization of Opportunities for Persons with Disabilities
(FN's Standardregler om Lige Muligheder for Handicappede - tiltrådt af Danmark i 1994)
http://www.geocities.com/HotSprings/Spa/4415/index.html
The Multiple Chemical Sensitivities Primer - Where to start looking for information about
MCS
http://www.n-i.com/NCchem/
North Carolina Chemical Injury Network
http://www.epa.gov/docs/opptintr/chemfact/index.html
Chemicals in the Environment: OPPT Chemical Fact Sheets
http://caq.com/caq53.gws.html
Gulf War Syndrome Covered Up
http://www.ssa.gov/SSA_Home.html
USA's Social Security Online
http://www.cdc.gov/
Centers for Disease Control and Prevention (CDC)
http://www.ou.edu:80/cems/
School of Chemical Engineering and Materials Science at the University of Oklahoma.
http://galaxy.einet.net/galaxy/Medicine/Medical-Specialties.html
Medical Specialties
http://www.med.nyu.edu/research.html
New York University Medical Center
http://www.interlog.com/~environ/
Environmental Health Group
http://charlotte.med.nyu.edu/niehs/NIEHSCenter.html
NYU NIEHS Center
http://www.envirolink.org/
Envirolink Home Page
http://www.sig.net/~allergy/welcome.html
The On-Line Allergy Center
http://www.epa.gov/docs/EPA-GENERAL/1995/October/Day-04/pr-626.txt.html
Proposed Guidelines for Neurotoxicity Risk Assessment
http://www.danmark.dk/hr/owa/danmark.dk?side=myndigheder
Authorities and organisations in Denmark
http://www.katalog.tele.dk/
E-mail catalog in Denmark
http://www.copenhagenpictures.dk/
Copenhagen pictures
http://www.garlicpage.com/
Info/recepies with garlic
http://www.ing.dk/
Ingeniøren on the net
http://www.astma-allergi.dk/
Danmarks Astma-Allergi Forbund homepage
http://www.astma-kbh.dk/
Astma-Allergi Foreningen in Copenhagen
http://www.cam.org/~intsci/people.html
Want to find someone on the Internet? These are a few tools available to help find E-mail
address, organization, host, domain, phone number, etc. through the Internet.
http://www.auh.dk/akh/afd/arbmed/uk/index.htm
Clinic of Occupational Medicine, Århus Kommune Hospital
FABULOUS ARTICLE ON HOW LIVER FUNCTIONS
http://www.positivehealth.com/permit/Articles/Nutrition/cabot37.htm
PORPHYRIA INFO
http://www.mall-net.com/mcs/porphyria.html
HYPERCOAG BLOOD AND CFS INFO
http://hemex.com/cfs/
http://www.ctaz.com/~donavan/evidence.htm
OXYGEN (HYPOXIC CONDITIONS) AND OTHER GOOD IDEAS
http://www.ozemail.com.au/~olbas/chapter2.html
http://www.ozemail.com.au/~olbas/chapter1.html
http://www.phymac.med.wayne.edu/FacultyProfile/penney/COHQ/figco10.htm
http://www.drbronner.com/ - Here you can read about Dr Bronner's Castile soap
Castile soap is some of the best I have ever tried. It dissolves i.e. grease spots - like them around the stove - and it doesn't crave strength. I can only recommend it. Since I bought it, I have had a spray bottle next to the sink with a solution of water and a tiny bit of Dr. Bronners castile Soap - you don't have to use very much - so it last for a long time. - One day Mikael came home with a quite large oil stain on his sweat shiret. As I had read and discovered that castile soap dissolve grease, I poured castile soap all over the stain, WITHOUT RUBBING IT IN, rolled the sweat-shirt together and legt it like that for apx. 3 hours before it went in the washer. When I took it out, the stain was almost gone. THAT was quite an impressive experience - oil is something which is very difficult to get off clothes along with red wine. I haven't had a chance to try it on red wine - will let you know, how it works,
I HAVE NOT BEEN ORDERED OR PAYED TO SAY THIS ABOUT THE RPODUCT - IT IS MY OWN PERSONAL OPINION ABOUT THE PRODUCT.
HERE ARE SOME MEDICAL INFO - MOST IN DANISH
http://www.medicus.dk/aspForside/inter.asp
http://www.mst.dk/homepage/
- The Danish EPA - Environmental protection Agency
http://www.healthatoz.com/ - A search engine concerning health
Safety Alerts - food recall information.
http://www.safetyalerts.com/rcls/category/food.htm
Clinical Considerations for Specific Herb-Drug Interactions & Potential Adverse Effects of Herbs this list may be found at:
http://www.healthmall.com/specific.html
The Danish Veterinary and Food Administration
http://www.levnedsmiddelstyrelsen.dk/java_enab/f_uk.html
Did you know that drinking tea may help you lose weight? A recent
scientific study supports green tea's ability to burn fat and increase metabolism.![]()
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